January 2019 updates

I have come to the next phase… the dreaded words … ‘There are no more options left’. ‘Palliative care’.  I knew this was coming, but it still shocks you ☹ They didn’t say it in so many words as they have given me some non-viable options. Options 1.  – There is a trial which is …

December 2018 updates

It’s barely been 3 weeks that I have stopped the trial medication, and my health is deteriorating rapidly.  It started with difficulty breathing, coughing… so much so that on the end I couldn’t walk to the toilet. The scan (ECHO, X-Ray) showed that the fluid build-up around my heart and lung has increased. Pericardial effusion …

November 2018 updates

It’s been 6 months since the last blog, and a lot has happened since. Mischa and I visited my brother in the States. We visited Boston, New York, the White Mountains and Salem all in one week.  Alex and Ildi really spoilt us… it was wonderful. Mischa stated secondary school and she loves it. We …

April 2018 updates

I have been feeling well for some time, all the way up to April.  I have also been treatment (chemo) free, as the CT scans have shown no disease progression. Which was really nice and had some great times with the family 🙂 However, it wasn’t to last 😦  Beginning of April I began to …